(Paper in progress)

Introduction:

Healthcare quality has traditionally been assessed from a technical perspective, with limited integration of the patient’s viewpoint. This study explores differences and agreements between patients with advanced kidney disease and healthcare professionals, focusing on key aspects such as communication, shared decision-making, and emotional support.

Objectives:

1. Measure the gap between patients’ perceived experience and professionals’ perception of that experience.
2. Identify areas for improvement using the Opportunity for Improvement (OdM) index.
3. Provide recommendations to better align patient and professional perspectives.

Methods:

A cross-sectional study was conducted using the XPAQ model. Two validated questionnaires were utilized, featuring parallel questions for patients and professionals, adapted to the hospital setting. Responses were analyzed quantitatively through descriptive statistics, and the OdM index was calculated to evaluate discrepancies.

Results:

The study included 879 patients and 75 professionals. Significant divergences were observed in areas such as participation in decision-making (high OdM) and emotional support (very high OdM). However, agreements were found in aspects like respect and dignity, as perceived by both patients and professionals. Data visualization facilitated the identification of alignment and misalignment patterns.

Conclusions:

Discrepancies in patient experience perceptions between patients and professionals highlight the need for greater integration of the patient perspective in care models. This study underscores the value of tools like XPAQ in identifying improvement areas and promoting patient-centered care. Future research should consider cultural and contextual factors to better address these differences.

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